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Abstract

Policymaking at the federal level is a complex process that occurs across the three branches of government. There are many potential sources that policymakers can reach out to in order to inform their decision-making, but one not yet explored in early intervention (EI) federal policymaking is organizations. EI includes services for infants and toddlers with disabilities and their families and is legislatively authorized by Part C of the Individuals with Disabilities Education Act. What makes EI unique is that it is served across multiple state agencies and involves many fields, such as child welfare, behavioral health, public health, education, and more. This two-study dissertation addresses the potential impact that organizations have on federal policymaking in EI. The first study used descriptive analysis to make an initial identification of potential organizations at the federal level who have the capacity to influence policy and practice and then explore what intermediary rules these organizations can fill. The second study identified what organizations policymakers utilize, through a case study of three EI-related policy documents. Overall, both studies explored how organizations bridge the gap in translating research to policy.

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