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Abstract

Twenty-nine children and adolescents with congenital heart defects (CHD) and their families participated in a study evaluating psychosocial functioning and the cardiac camp experience. Baseline levels of psychosocial functioning of children with CHD were significantly lower than healthy peers in most domains assessed. With repeated measures analysis, levels of anxiety reported by the child and separation anxiety reported by the parent decreased as a result of camp. No other significant changes were noted. Statistically significant regression models predicted positive and negative camp outcome. Through examining camp outcome measure scores, it appears that many of the specific deficits that children with CHD experience, such as social isolation and physical limitation, are alleviated while at camp. Future interventions to address pre-camp factors such as negative expectations associated with a difficult time could improve the experience for children who attend camp.

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