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Abstract
Objective: The current study aimed to create and validate a parent-proxy version of the IMPACT-III, an IBD-specific measure of health-related quality of life (HRQOL). Validity and reliability analyses were conducted. Method: Youth (N=36) diagnosed with inflammatory bowel disease (IBD) reported on their HRQOL and pain interference, parents reported on their childrens HRQOL and psychosocial functioning, and physicians completed a measure of disease activity. Results: The parent IMPACT-III was strongly, positively associated with the PedsQL. Higher parent IMPACT-III scores were associated with less pain interference, but were not associated with disease activity. It was not more strongly related to disease activity than anxiety/depression. Internal consistency, parent-child agreement, and item-level analyses revealed strong reliability. Conclusions: The parent IMPACT-III showed strong criterion validity, adequate construct validity, and strong reliability. It may be used with, or as a possible alternative to, the child IMPACT-III to provide valuable information regarding HRQOL in youth with IBD.